Please visit the IC awareness page for an amazing video, and more info on where you can find help on Facebook!!

 

 

 

****New Exciting Updates to ihaveic.com!!!! Ihaveic.com is now on twitter, and facebook!!!! I also have a new email at ihaveic.com@gmail.com. Our twitter is @ihaveicdotcom!!!! I am working on the facebook page and will have it finished shortly. Friend me and join the excitement from ihaveic.com!!!! I have more in store to come so I will let you know what is going on soon!!!! ****

I have access to a page that will tell me what search words people type in and it leads them to this site. I have to say I’m very concerned about someone. The search they put in was My urethra is blocked: I have a link to wikipedia to help you get some information, I also have some more info on the What you’re searching for page. Here is your link for the urethra I want you to know I’m praying for you and for your doctors that they will find out what is wrong and you will be able to have some relief. Good luck!!!

 

**All categories for my blog posts are at the bottom of the page on the left hand side** Interstitial cystitis (commonly abbreviated to “IC”) is a urinary bladder disease of unknown cause characterized by urinary frequency (as often as every 10 minutes), urgency, pressure and/or pain in the bladder and/or pelvis. Pain typically increases as the bladder fills and reduces after voiding. However some patients report pain with urination, often in the urethra. Patients may also experience nocturia, pelvic floor dysfunction and tension (thus making it difficult to start their urine stream), pain with sexual intercourse, and discomfort and difficulty driving, traveling or working. Research has determined that the quality of life of IC patients is equivalent to those with end stage renal failure. This is the definition of Interstitial Cystitis (IC) from the Wikipedia online encyclopedia. There is no known cause for IC, but there are some theories that have been put out. These theories are, IC is autoimmune neurological, allergic or genetic.

I was diagnosed with IC in March of 2006. I am starting this web site because when I was diagnosed, I found plenty of sites with information, sites where you could ask questions and someone would answer, but I never really found a true account of what I could expect. So, that is my mission. I want to let people know what to expect, talk to other people who have IC, hear their stories, and provide news links as to what is going on in the IC community. I have created a glossary of terms everyone should read; I will be updating it as we go. If you are unfamiliar with a word and it is not in the glossary contact me and I will add it! Also, this is a work in progress. I’m writing all the journal entries from at least a couple of years ago, and will start writing new entries once I am finished with those so people are not unfamiliar with what is currently going on. I also want to let everyone know I AM NOT A DOCTOR. I cannot provide you with medical advice. Also, every treatment for IC has a 50% chance of working. If something didn’t work for me, it might work for you.

There are many great doctors out there working to find out what the cause of this horrible condition is. Hopefully they will find it someday, but until then we have some treatments. Unfortunately, they don’t all work for everyone. So, until we have a cure, we need to deal with what we have. PLEASE, do not take everything as what has happened to me as what will happen to you. It may or it may not. Like I said with a 50% chance of treatment working, you might be one of the lucky ones. I also am trying to get some attention to the outside world about IC. Not many people have heard about it. So I’m trying to see if some funding can be brought in, I’m trying to write letters, and see what will happen. If anyone is interested in helping let me know. Thank you for taking the time to read this and for visiting my site!

Cathy