• Posted by tuckersmimi
  • 27 Jan 2010

I had a hysterectomy about 4 yrs ago because of a cystocele. Everything went fine after my recovery time.  After a couple of yrs I started going to the bathroom a lot more, having infections, and basically was so tired i did not even want to get up of the mornings. I did not want to think about  something going wrong so i put it out of my mind until last Christmas when we made a trip to Iowa to pick up our grandson and before I got there I could not go to the bathroom. After many trips of sitting in a hot tub I finally got things to working and when I got home I made an appointment with uro, after several trips and some testing he confirmed I had ic and pfd. I had never heard of ic so I stopped on the way home to pick up a handbook which told me just about everything I wanted to know. During this month I was also diagnosed as having fibromyalgia, rheumatoid arthritis in hands, and in knees and lower back, all of this explained a lot but I was scared, mad, depressed,then back to mad again. For the next few months I could probably count on one hand the times I was out of pajamas and recliner! My heating pad and bathtub were my new best friends! I really don’t know why everything hit me at one time but it really changed my life and not for the better. The pressure and pain got continuously worse until Aug of 09 I had to have bladder support surgery again. Uro told me it was nothing that I had done he suspected it was the ic to blame, anything out of the ordinary throws my bladder into a fit so needless to say after this surgery it was  a month before I could actually go to bathroom like a normal person. Things have been fairly decent until now and the spasms and pain has started again. Uro told me at last checkup I could do no more lifting, or straining of any shape form or fashion, he said it would be the repetitious daily things that would get me into trouble so that meant no more keeping grandchildren…I cried all day.  It has been 5 months since surgery and if I am on my feet all day long I feel like everything is going south again. I am lucky in the fact I do have someone to help with the housework and my mom helps me daily.  It is so frustrating because I WANT MY LIFE BACK!  At a time when I should be enjoying myself I have to deal w/pain every day. I do worry what the future holds for me, I realize it could be a lot worse and I am thankful that I am not in as much pain as a lot of people I have talked to. I try and watch what I eat and I have found a few foods that really set things off. I have only had to have 2 instills  but I think I will probably have to start them again, I take trammadol/Tylenol 3x a day plus methocarbamol 3x a day, so far it kinda keeps things under control but I still have a lot of spasms especially at night. I really hate being so negative but I’m still kind of a newbie to all this, you see I have always been a take control, get things done person…and that is not happening anymore.

  • Posted by sunmayden518
  • 27 Jan 2010

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