• Posted by Cathy
  • 12 Oct 2013

I’ve been having extremely painful urethra pains. I wake up in the middle of the night thinking I’m going to pee right there on the spot! And it hurts so much. The 1st night it happened I was at my bedroom door hand on the knob ready to open it when I woke up enough to say hey I don’t pee like that!!!! I went back to bed, tossed and turned, finally got back to sleep before I woke up again. This continued for 3 straight nights before I finally called the uro and he sent the paperwork in for my nerve block. He also put me back on the diazepam. I had taken myself off of it the last time I was in Texas. I’ve been off of the diazepam for 5 months. I’ve also been taking less of methadone and oxcarbazepine. But that I’ll let you know about a little later.

The idea behind the nerve block and diazepam is to help my pelvic floor muscles relax and help the urethra relax some also. I got my nerve block in September shortly after my appt with the uro. For some reason my pelvic area just reacted bad and I had such horrible pains. Sometimes I’ll get some pain after the blocks, however nothing like this. I was 3 months overdue. I’m allowed to get nerve blocks every 3 months. I had a busy summer, helped out my college roommate when she had shoulder surgery, and went to see my friend in Texas in April. Also, some dog and house sitting in between and made for a busy summer. Ok let me get back on track. I stayed after the nerve block for quite awhile while I was waiting for the pain to stop, I was really worried I would have to stay overnight in the hospital. I started feeling a little better and got a shot of toradol and took off for home. By the next day I was recovering nicely. I felt ok for a few days and the urethra pain started up again. I used lidocaine cream and put it on my urethra so it would help and let me tell you it works wonders!!!! I am going back to the doctor’s Thursday and hopefully can get some lidocaine shots in my urethra. It hurts but it feels better in the end!

I decided to join weight watchers in January of this year with my mom. Thank God for her she is so much help with encouraging me and helping me. I have lost 38 pounds!!! It was 45 but when I had my flare up I gained 7 back. So I am back on track and going stronger then ever. One thing we decided in our last meeting, well that we all promised was to get up every hour and be active for 5 min for the whole day. I normally walk once a day whenever I can but lately it hasn’t been working out. I’m getting back in the habit of walking more. Thursday I had 11 exercise points!!! Trust me when I say that is a lot!!!! Since then I’ve got 3 for the last 2 days. I’m working slowly but surely. I’ve had some bladder pain today off and on. It’s been happening when I’m walking every hour. I’m kinda worried because I want to keep up the 5 minutes of exercise every hour, but…..I’m just going to do the recommended 5 min instead of how I am doing 10 instead. Good news about losing weight is that I can take less medicine and am more alert!! I am no longer a zombie that sleeps and so zombie like I practically drool. I can actually remember things, well a little better, and can stay awake longer! My days are a lot better. :-)  However I am having some insomnia issues, I have sleeping pills but I don’t believe they’re working anymore. I tried the other day to just put my book away, turn my light off and close my eyes and I’d just fall asleep! That started at 12:30 the last time I looked at the clock it was 3:30! That didn’t work out so well. Thursday night I FINALLY got a good nights of sleep and it was wonderful!! Since then not so much. But I’ll figure something out. If anyone has any suggestions let me know.

I have set up Twitter for the site, got a new gmail account and also started a Facebook page!!! I have a few more ideas but if anyone else has any ideas let me know. Thank you everyone for all of the support!!!! I really appreciate it!!!!! Thanks everyone!!!!!!!