• Posted by Cathy
  • 06 Dec 2008

I set up google to alert me to new sites, blogs, and the like that contain anything with Interstitial Cystitis. So I got a new one today, it was from a site about women who have had hysterectomies. So the post was about a woman who is having problems recovering, and it goes on to say she has had UTI symptoms for 3 months, but has always had a negative UTI test, and that means she has Interstitial Cystitis, and she knew she had it because she’s had bouts of it before.  After, I read that part I was really irritated. I signed up, I had to make up a hystectomy date, and I tried leaving a post explaining to her what IC actually is. So I went to post, and it said I couldn’t post until 24 hours after registering. I was even more irritated. So I’m waiting……(always waiting) I am going to make a post. This is why there are so many people who have screwed up ideas of what IC actually is! People are not informed but think since they know a little bit, well, of course that makes them an expert. I’m not saying I’m an expert in the field but I do know that a negative UTI test DOES NOT mean that she has IC!!! I’m hoping this site, and hopefully things the IC Association and IC Network are doing will help to inform people to what IC actually is!!

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