• Posted by Cathy
  • 30 Nov 2008

Understanding is very difficult when you have IC. Your family and friends (at least the good ones) are very supportive, listen and help you with what you need (carrying your laundry up the stairs, doing your dishes and cleaning your place because you can’t move off the couch). Or it can be just as simple as watching a movie with you, or just spending the day, it helps to make me feel as “normal” as I possibly can. They only hard thing is they don’t know what you are going through. They are sympathetic, but don’t truly understand the pain. Something as simple as taking a shower can send me to the ER.

Support through this is key, it is what has gotten me through this pain…..however, having someone who has gone through it or is experiencing something similar is crucial. I have someone in my life with a closely related condition. He can relate to the multiple bathroom trips, and the pain. It’s good to be able to talk about the conditions, medications and treatments freely with someone who is experiencing something similar. This helps a lot! At least he isn’t saying “I feel sorry for you!!” I still feel the need to talk to someone who is going through the same this as I am. Someone who is tired of the millions of pills, the pain and someone who is feeling the same hopelessness that I am. It always seems my doctor is there with the answer, however each answer only lasts 3-4 months. We’ll see how long the next answer will last.

Written November 24, 2007


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