• Posted by Cathy
  • 05 Jan 2009

I know it’s been awhile since I’ve been on here and update things. And I apologize to people reading this. Holidays have been crazy!

My doctor wants me to start bladder instillations again. So I did. The first time I did, it hurt my urethra and bladder so bad, I couldn’t stand it. I used to be able to hold the lidocaine in for about 2 hours. I lasted 10 minutes this time. It took me 3 days to recover from it. So I’ve been trying every 3 days to do a catheter treatment. I’m starting to get dried blood coming from my bladder. When I had the nephrostomy bags, I had blood in my urine, and the doctor said it was normal, because a IC bladder does bleed. I hadn’t noticed it before because there was a lot of urine compared to very little blood. When I got the bags, it went to very little urine, and noticeable blood. So it’s making me nervous that I’m getting dried blood.I know it’s normal for an IC bladder but it’s always a little bit scary. It started like the second time I did a bladder instillation.

I’m kind of confused as to why the doctor wants me to do bladder instillations. I have the urostomy bag so there is nothing going into my bladder, and he says he thinks that the pain is coming from the outside of my bladder. So….I’ll have to talk to them when I go in next Monday.

I’ve been having some problems with my wafer and bag. I’ve had a couple of leaks lately and my skin is becoming very dry again. I ordered a new lotion from Edgepark. It’s fast drying but it makes things slippery too. I hate having leaks. They always happen to me in the middle of the night, it’s really irritating to wake up in the middle of the night and be wet. I’m not having soaking wet leaks, but just enough be know I’ve had leaks.

So now that the holidays are over I’m going to go back to daily posting, and a lot of research for updating the website.


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