• Posted by Cathy
  • 04 Aug 2010

On Monday the 9th I’m going to have another cystoscopy. I’ve been in a flare for 2 weeks now. Some days really bad some days not so bad. But it is definitely IC pain that I’m having. So my doctor would like to do another cystoscopy look in my bladder, take some pictures, see if it’s shrunk some, and he is also going to put some silver nitrate in to help treat the pain and spasms. I have read just what wikipedia said about silver nitrate said about it, and it didn’t give me much about treatment. I have been having some urethra spasms as well. I HATE urethra spasms they make me feel like I have to pee so bad! I know it’s not true because I don’t use my bladder. The doctor did give me some Gelnique Gel (oxybutynin chloride) and it helps instantly! I need prior approval for medicaid so I’m waiting on that. I also have switched counties, so I’m having difficulties with switching everything, and it’s soooo different then the last county (a lot bigger) I’m having problems with return phone calls. Tomorrow is going to be spent calling my social worker every 15-30 minutes.

So back to the cystoscopy. I totally trust my doctor and will do whatever he wants to do. He’s been going on this journey with me for 3 years now and I totally trust his expertise. So I will give you all the results of what happens after the procedure. I’m a little frustrated as well. I’m hoping I’m not backsliding. I’ve been feeling so good for so long and like always 2-3 months after a surgery I start getting pain again. But I’m going to look at this as we’re catching this early and this will help, then we’ll be all set. So I’m hoping this silver nitrate will work!

 
 

3 Responses to “And yet ANOTHER cystoscopy! August 4,2010”

  1. Trini Says:

    Hi there Cathy! I Trinidad from Chile and i have IC too (4 years until now). I have a question, You still have your urethra after your neobladder surgery?? your doctor didn’t take it away?? Because you said “I HATE urethra spasms…” ¿?

    I will have a similar surgery soon, but my doctor plans to extirp my bladder and my urethra beafore make me a neobladder. Thats why I’m asking you this. I so scared!! I dont want any more pain after this surgery please!!! :_(

    I Hope you’re feeling Better Now!!! Much better!! seriously!!! My best wishes to you and your new neobladder!!! tell me please if you are healthy now!!

    Regards!!

    Trinidad

  2. Cathy Says:

    Trinidad I’m soooo very sorry I haven’t replied I’ve just been going thru rough patches at the time of your post. But yes I definitely have urethra spasms! The silver nitrate has helped a lot I haven’t been getting the treatment lately because of problems with my vaginal area lately.
    This surgery has made me feel free! I don’t have as much pain and I am feeling good. I won’t say wonderful but I’ll say good which I wasn’t able to say 5 years ago. So is your doctor taking out your bladder and urethra? Is that how I’m understanding it?
    I hate to say this but there will still be pain. The surgery doesn’t work exactly the same for everyone. You know the treatments we get have a 50% chance of working unfortunately. But I would recommend the neobladder to anyone! I love it! I still have my original bladder and get pain, but it’s not as bad as it used to be.
    Please feel free to email me anytime. I hope things are going well with you!
    Cathy

  3. Cathy Says:

    Trini
    Another thing I forgot to add is about phantom pain w/removing things. My dr didn’t remove the bladder because there’s not enough evidence one way or the other as to if it would have a better effect, as in take more pain away by removing it. But there will also be phantom pains and you will still feel like the bladder and urethra are there at times. I don’t have as much urethra pain as I was having. It’s kind of evening out now. So Hooray for that! But once in awhile it will let me know it’s still there. Let me know what is going on with you. Again I’m really sorry I didn’t respond quicker. I’ve kind of let this project fall by the wayside and I need to work on it again. I’ll be updating probably next week I have a lot to do this week. Thank you for being a member and supporting the page. I hope things are going great for you!
    Cathy

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