• Posted by Cathy
  • 30 Nov 2008

Today is the day I start my “condition journal.” Who knows maybe someday it could be a help to someone, however right now I need and out for my frustrations and feelings. When I was 19 (1999), I was diagnosed with endometriosis, and ovarian cysts. In March of 2006 I was diagnosed with Interstitial Cystitis. Pretty much, the end of my life as I had known it. The real pain started in November of 2006. I was up to over 25 pills a day and was hardly able to walk, or function. In May of 2007 I had a nerve block, that would last a week and it worked so they did a radio frequency ablation. It worked really well, I went to Disney the following week. Now the pain is back. It started in early October. My pill regiment is now MORNING: 1-20mg megestrol (for endometrosis), 2-5mg methadone, 2-300 mg Gabapentin (working back up to 3), NOON: 2-5mg Methadone, 2-300 mg Gabapentin (working up to 3), EVENING: 2-25 mg Nortriptyline, 2-5mg Methadone, and 3-300mg Gabapentin. This totals 16 pills plus 8 vicodin and 2 Valium a day. Grand total of 26 pills a day. I’m sick of it! I pee up to 30 times a day. Before I go to bed I read or now journal, and will go 3-10 times before I fall asleep. I used to have to catheterize myself to put Heparin and and Lidocain in my bladder to relax it. It used to work(just like everything else) but it no longer works. The next step for me is electrodes being put on the nerves attached around the bladder, I will have wires hanging out of my back and a battery pack (or generator as my doctor likes to call it) that attaches to my pants (like a pager). I’m going to feel like a human robot!! If it works permanent ones get put in and I get an internal battery. I hate this condition, I hate what it has done to my life and I wouldn’t wish it on my worst enemy. For some reason God thinks I can handle this. My attitude is not always a cheerful one, but I do try. So my prayer for God tonight is: God please take some of the pain away, even if it is just for a couple of minutes, please help me to accept that this is now a part of my life. Amen. Written November 18, 2007

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