• Posted by Cathy
  • 29 May 2009

I’m very angry, and upset, and just disappointed yet again. The super high power instillation I had been doing has stopped working! After I do them, it takes about 3-5 days to get all the fluids out, and I experience really high pain levels the following few days after the instillation. I was hoping this was something that would help me, but silly me I should have known. Everything that works, only works for awhile. I’m mad, and just don’t know what to do anymore. I need something to work because I can’t keep living my life in bed with a heating pad on. That’s the extent of what my life is right now. I feel like I’ve been robbed. People my age are working, having a family, and going out and enjoying themselves. But here I am in pain and not able to do anything. I’m hoping I’m just going through a flare stage, it’s been going on for 3 weeks. I see the pain doctor on Monday, and I’m hoping he has some new light to shed on this, because something really needs to be done! I just don’t know what to do anymore. My only other option for surgeries is to get the Indiana pouch and get rid of the bag. I’m going to ask for a second opinion on the pain pump and see what happens. I need something to be done, I just….don’t know anymore. Hopefully one of these doctor’s that have such brilliant minds can come up with something. I love my doctors, they’ve helped me through a lot but it’s time to take some drastic action, and come up with some answers so I can enjoy my life, like I’m supposed to.